LeDeR

 

LeDeR is short for an NHS programme called ‘Learning from lives and deaths – People with a learning disability and autistic people’.

The LeDeR programme looks to learn from the lives and deaths of people with a Learning Disability or Autism, using this knowledge to improve services and reduce health inequalities. Health inequalities are unfair differences that are seen when someone receives healthcare.

Two members of staff, who are Experts by Experience, sit on the LeDeR Quality Assurance (QA) panel to ensure that the voices of those with lived experiences are heard.

As well as being involved in the QA panel, Inclusion Gloucestershire are also creating an accessible LeDeR bi-monthly newsletter and other Easy Read information resources.

Our Latest Bi-Monthly LeDeR Newsletter

Our Latest LeDeR Annual Report for Gloucestershire

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 Full report

Easy Read Report

Easy Read Information Resources 

The LeDeR team have developed the Easy Read resources below to help tell people about the programme, the learning from LeDeR and the support that is available when accessing healthcare.

More resources will be added, so please keep coming back to the page to check.     

About the LeDeR programme in Gloucestershire 2022

 

This explains how the programme works, the learning themes that come from the reviews and the action from learning.

 

The Community Learning Disabilities Team Memory Assessment Pathway (MAP)

 

It is common for people with Down’s Syndrome to develop Dementia. In Gloucestershire the Community Learning Disability Team (CLDT) have a Memory Assessment Process (which can also be called a pathway). This is for adults with Down’s Syndrome (from the age of 30) and any adult with a Learning Disability who has possible memory issues.

Working with the CLDT we have coproduced an Easy Read leaflet to help explain more about the Memory Assessment Process and how it can help people.

Aspiration Pneumonia

 

This explains what Aspiration Pneumonia is, the signs of Aspiration, things that put you at risk of Pneumonia or Aspiration Pneumonia and importantly where to get help.    

 

Accessing Healthcare in the Community

 

This explains some of the things that can help when accessing healthcare in the community. 

 

Easy Read Constipation Leaflet from the NHS

 

 

It would be great to hear your feedback…

If you have any suggestions on how we could improve our bi-monthly LeDeR newsletters or any of our other resources, please contact our LeDeR Project Coordinator, Paul Tyrrell, via email: paul.tyrrell@inclusion-glos.org

Where can I find out more information or report a death to the LeDeR programme?

To find out more information or to report a death to the LeDeR programme, please visit this website: https://www.leder.nhs.uk/

You can also view an Easy Read update on the national LeDeR programme, written by the NHS and the University of Bristol in June 2021. 

Archive Newsletters

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2022

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2021 

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Previous Annual Reports

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Easy Read Report

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Easy Read Report

April 2019 to March 2020

1 January 2017 to 31 March 2019